We officially got the OK from Dr. Kao to go on vacation. She thought everything looked fine for now and she has no worry about him being gone. He is pumped!!
During the appointment the Echo showed that his leakage was worse. After his Echo, the Cardio, Dr. Kao told us, she did not like his Tricuspid Valve (always been a problem). Dr. M. (Surgeon) has been waiting for the valve, his heart and Ayden to grow before he did anything. And when we talked in Dr. M in May he was not wanting to do anything to the Tricuspid Valve. He thought that with the new pulmonary artery and valve - between the two valves he would be okay. But something might have changed - Dr. Kao said it is just too small and not working well at all. Well, the problem is, Ayden's body does not like these artificial "tissue" parts and it has rejected them all. So we will be just asking for more trouble (we think). The alternative is a mechanical valve and they are HUGE. So we are waiting for Dr. Kao to talked to Dr. M and see what they decide. My guess is they won't do anything this time. The other alternative is the fontan procedure where all the blood is redirected from the right side of the heart permanently. No one wants to see that happen - at least not yet! I have added a picture of the two thing that might be happening during the surgery.
The long blue tube in the middle is what they are defiantly taking out and the Tricuspid Valve that I have circled is what is too small and not sure yet if they want to take it out or not tohut it off all together. We hall see. In the mean time....... WE'RE GOING BACK TO THE BEACH!!!
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